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Posts Tagged ‘visiting dad’

I can’t see my Dad this week. My daughter needed me. She called, I travelled. Anytime one of my girls say they need me takes precedence over everything. I do feel bad because my Dad is not doing well at all.

It started Monday. My Dad has been feeling very anxious because he can’t remember things. Because of the anxiety he is not eating and is sleeping at odd hours and not for long enough. He is on anti-anxiety medicine but it is too recent to be completely effective.

I called him on Monday to let him know that I will not be visiting him this week. I had to be out of town. He sounded awful, didn’t know it was Monday, and I am pretty sure I woke him up (it was 10:30 in the morning). We are talking to Hospice to have them come in and help make him comfortable.

About 7:45PM Dad called me. He was very confused and having a panic attack. He woke up from a nap and didn’t know where he was. I had him push the call button and got the CNA to get the nurse for his medications. I also texted my siblings what was going on. He kept saying he was scared and didn’t know what to do. Luckily my niece A was in town and able to see him. They got him into his pj’s and to bed.

I talked to him on Tuesday and had a really weird conversation with him. He said people won’t leave him alone to get his work done. I asked what people and what work did he need to do. He said he told him to do the work  and now they want him to take out and change the information he took all morning to input in the system. I asked him what system and he mumbled something and got more confused. I told him it’s ok, the work can wait until later.

The Doctor says it’s time to call hospice. Wednesday B went to see Dad and he wouldn’t wake up. A says that Gpa says the Russians are helping him with his breathing treatments. I have no idea what that means.

This morning (Thursday) he called B. He was highly confused, told B that he is in bad shape (I think that is the first thing he tells everyone these days) and is ready to give up. It is so hard to hear. It makes my heart hurt.

My brother C is going to visit this weekend. We have discussed him telling Dad that it is ok to go be with Mom. None of us want him to suffer anymore. As B said “Honestly I’m kinda praying for it . . . I can’t imagine what he is going through in his mind.” I agree with her. None of us want him to go but none of us want him to stay with the way things are going.

My heart hurts.

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After 30 years a new family will live in my Mom and Dad’s house. I finished cleaning out and cleaning up the house yesterday. I had never seen this house empty. It was a bittersweet day; the end of an era for us. Empty houses hold such promise, I hope there will be lots of sweet for the new people and hardly any bitter.

I stopped in to see Dad before going to the house. He was sleeping. I stood there and watched him sleep for a while like I used to do with my kids. Unlike with my kids watching my Dad made me sad instead of happy.

Even in his sleep breathing is a struggle. He looks so small and the effort to move air is so hard for him. Part of the problem is he lays down flat to sleep. With as bad as his lungs are he should be sleeping sitting up. He has never been able to sleep that way, so he won’t.

I left after a few minutes and went to finish the house. There wasn’t much left and I had everything cleaned and loaded in my car before noon. I checked the house multiple times to be sure I had everything.

Once done I set my timer and sat down on the floor and meditated, remembering the fun times we had in that house. Remembering the sad times we had in that house and missing my family. I cried a little, I smiled at the memories, I left wishing the new owners all the happiness we had experienced and more.

I stopped in to see Dad before I headed out of town. His breathing was still labored and I was lucky that the respiratory therapist came while I was there. Because he was struggling even after using his rescue inhaler she had them give him a prednisone. He is to take it again today if he is still struggling.

He can’t be on prednisone all the time because of the side effects. ‘roid rage is a real thing. Sister B and I have been on the end of some of that and the staff at the home does not need to deal with that if they don’t have too.

Dad’s memory isn’t good. He has a hard time understanding what is happening. He forgets when he took his medicine, he forgets the names of the people who are taking care of him. It frustrates him that he can’t keep things in his head. It also makes him anxious. Brother G said he talked to him today and Dad sounded awful.

We are on the downhill slope. I am still hoping that it will be a gentle bunny hill but it feels more like we are heading down a mountain. COPD is a horrible insidious disease. It is robbing us of our father/grandfather/great-grandfather/brother/uncle.

There are times when all I do is feel. Everything feels raw and right at the surface. Other times I feel numb. Sunday I wanted to cry until I threw up. Yesterday there were tears but not as many. Today I feel rather detached from it all. That inertia is very hard to overcome. I know it is grief. We are all feeling it. I will write about my grief another time.

The end of the era of visiting at the house is over. I don’t know how long we will have with Dad but I am so very grateful for everyday.

Happy thoughts for a happy day!

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The trouble is you think you have time

– fake Buddha quote, but still relevant

I saw Dad twice this week, Monday and today. I was trying to think of a theme for this weeks blog and then this quote popped up in my Facebook feed today.

The trouble is you think you have time. We all think we have time, more time to take care of things, more time to visit people, more time to take care of ourselves, more time . . .

My Favorite Dad

Gpa

I know I hope I have more time. I am lucky right now that I have the time to go see my Dad as often as I can. This week I was able to see him twice; I am trying to see him at least once a week. But time is against us. I have so many other people I want and need to see as well.

This week on Monday Dad was doing pretty well. When I got there he was in the cafeteria eating lunch. Today he was eating in his room. On Monday I left before 2 because he was worn out and looked like he would fall asleep before I made it out the door. Today he was tired but not as much as Monday and I left shortly after 2.

We were able to begin the process of getting help from the VA today. It is amazing how much paperwork there is to deal with. We are very lucky that our sister B is wading through it. I do not have the patience to wade through forms.

I hate the feeling and the knowledge that we have a finite amount of time left. I hate knowing that he has less time that we want. We had too short an amount of time with my Mom. And now. And now, the clock is ticking louder and faster and I don’t like it.

 

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